Tuberculosis (TB)

Disclaimer: This fact sheet is for education purposes only. Please consult with your doctor or other health professional to make sure this information is right for your child.

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What is tuberculosis?

Tuberculosis or TB is an infection, caused by a bacterium called Mycobacterium tuberculosis.

How is TB caught?

The commonest way of catching TB is to be in contact with an adult who has TB of the lungs (pulmonary TB) and is coughing.

Children with TB are usually not infectious. That is, in general, children do not spread TB to other children or to adults. Children catch TB from adults.

What happens if children catch TB?

Some children can catch TB but be completely well (asymptomatic). This is called latent TB infection (latent means hidden). Sometimes, latent TB can progress to TB disease, so it is usual to treat children with latent TB using one or two anti-TB drugs. Although TB disease may develop many years after infection, young children are at the highest risk and TB disease can develop after just a few months.

Some children can be ill with TB and we say they have active TB disease. TB disease can affect the lungs (pulmonary TB), which can be seen on chest x-ray. TB can sometimes infect the lymph nodes of the neck (TB cervical lymphadenopathy), the bones (TB osteomyelitis), or most severely infect the fluid around the brain (TB meningitis). Children with TB disease may have fevers, night sweats, weight loss and sometimes other symptoms. TB often comes on gradually, with children slowly becoming ill.

Can TB be treated?

Yes. We have several highly effective drugs against TB. For children with active TB disease it is usual to start with 3 or 4 anti-TB drugs, given by mouth. This medicine is free.

Mycobacterium tuberculosis is a very slow-growing organism. This means treatment must be continued for 6 to 12 months.

TB can almost always be cured. Children receiving treatment usually recover completely and have no long-term problems. The very rare condition of TB meningitis is more difficult to cure and children can have permanent brain damage and it can be fatal.

What is directly observed treatment?

Treatment for TB disease is organised by your local chest clinic at a time and place that is acceptable to both you and the clinic nurses, often at home. It is recommended that you see your local doctor about going to a chest clinic, although you don't need a referral to go to one. Because it is so important that children take all their TB drugs, the chest clinics insist that one of their nurses actually sees your child taking their medicines. This is called directly observed treatment. It is considered essential for all children with TB disease.

What is screening?

When someone is found to have TB, it is important to screen (test) adults and children in the same household to see if they also have TB. Screening is usually with a special skin test (Tuberculin test or Mantoux test) and a chest x-ray, but may sometimes include a blood test. Contact tracing is done confidentially.

Does the school need to know?

Children are not usually infectious to other children. Families of children with TB have a right to privacy. It is not necessary to let the school know that your child has TB. If you choose to tell the school or any other group your child is involved with, that your child has TB, it is important that you talk to the chest clinic nurses first. The chest clinic will be able to give you advice and information on the best way to tell others. Neither the hospital nor the chest clinic will tell the school unless the family wants us to do so.

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Kids Health (CHW)
The Children's Hospital at Westmead
Tel: (02) 9845 0000
Fax: (02) 9845 3562
Sydney Children's Hospital, Randwick
Sydney Children's Hospital, Randwick
Tel: (02) 9382 1688
Fax: (02) 9382 1451
Kaleidoscope, Hunter Children's Health Network
Kaleidoscope Children Young People and Families Network
Tel: (02) 4921 3670
Fax: (02) 4921 3599